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Publication Type
Journal Article
Author, Analytic
Anderson, M.; Asnani, M.
Author Affiliation, Ana.
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Article Title
You just have to live with it”: coping with sickle cell disease in Jamaica.
Medium Designator
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Connective Phrase
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Journal Title
Quality Health Research Journal
Translated Title
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Reprint Status
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Date of Publication
2013
Volume ID
23
Issue ID
5
Page(s)
655-664
Language
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Connective Phrase
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Location/URL
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ISSN
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Notes
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Abstract
Research has shown that living with sickle cell disease (SCD) can be a considerable challenge. Unfortunately, although it is Jamaica's most common genetic disorder, to date, no qualitative research has been conducted on Jamaicans' experiences of SCD. We conducted thematic analysis on transcripts of in-depth semistructured interviews with 30 patients and found two interlinked themes bound up in life with SCD: loss and control. Faced with important losses, respondents used cognitive and behavioral coping strategies to reestablish control over their response to SCD, others' responses to SCD, and SCD's physical manifestations. Although the adaptive nature of some of these strategies is debatable, many facilitate management of the illness. Health care practitioners should encourage positive coping strategies and have nonjudgmental discussions with patients about (potentially) negative ones. They should also share information with nonspecialist doctors and nurses to reduce stigmatization around the illness. More exploration of this underresearched topic is needed.....
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